Doin’ time for Muscular Dystrophy Association | PostIndependent.com

Doin’ time for Muscular Dystrophy Association

The Muscular Dystrophy Association was founded in 1950 when a small group of parents whose children suffered from muscular dystrophy formed with the purpose of eradicating neuromuscular diseases. The association’s programs are funded almost entirely by individual private contributors. MDA receives no government grants, and does not seek or receive funds from individuals served or their families. Money Magazine ranks MDA as one of its Top 25 Best Managed Charities.

The term muscular dystrophy designates a group of hereditary muscle-destroying disorders, which vary in inheritance pattern, age of onset, initial muscles attacked and rate of progression.

The diseases of muscular dystrophy affect neuromuscular function, metabolic disease of muscles, degeneration of the nerve cells in the spinal cord, fluctuating weakness, progressive weakness and atrophy of muscles and inflammation of skeletal muscles.

Last year was the first year I was involved in the MDA Lock Up in Glenwood Springs. I wrote a column asking for Nancy Newton’s friends and acquaintances to save her from the considerable detriments of jailtime. I appeared at the “jail,” which was held at the Bayou Restaurant last year, to support Newton in her quest to be released from her bondage.

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This year the tables have been turned and I have been chosen to do “hard time,” in which I must raise $1,200 for my bail money.

All funds raised during the lock-up will be used to send kids to a weeklong MDA Summer Camp, which is held in Empire, Colo. The camp is for children afflicted with one of 43 neuromuscular diseases supported by MDA. Since 1955, the MDA Summer Camp has provided kids with neuromuscular diseases a magical place where they can participate in a wide variety of activities specially designed for their needs.

Bail money will also benefit MDA’s local health care service program as well as worldwide research efforts. All money collected will stay in Colorado and benefit patients and their families in the form of support groups, diagnoses, therapy, assistance with purchase and repair of wheelchairs, and genetic counseling.

A sampling of other Roaring Fork Valley participants of the MDA Lock Up this year, some of whom are “repeat offenders,” includes Tim Gingles, Trish Romero, Bob Zanella, Jim Lord, John Daley, Georgia Chamberlain, Paul Freeman, Tim Madden, John Poneta, Bob Snyder, Andrew Wheeler, Rich Duran, Scott Gardner and Yancy Nichol.

All deductions are tax deductible. Your canceled check can serve as a receipt.

I’m appealing to my loyal readers to support my efforts for MDA, so I may have a chance to return to my normal life after June 10 and once again write more columns about all the great things happening and the generous people of the Roaring Fork Valley. If you would like to help raise my bail money, either send a check, in care of the Muscular Dystrophy Association, to Kay Vasilakis, P.O. Box 951, New Castle, CO 81647, or visit me in jail at the Brewpub at noon on Thursday, June 10. Please don’t make me have to sing “Nobody knows the trouble I’ve seen.”

Kay Vasilakis’ column, “Nonprofit Spotlight,” appears every other Wednesday. For news tips and inspirations, please call 984-2308.

Proceeds Support: Muscular Dystrophy Association

Date: June 10

Where: Glenwood Canyon Brewpub

What is it? Local citizens are “locked up” in “jail” to fund-raise for MDA

What is MDA? A dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases affecting more than a million Americans.


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